Tuesday, March 12, 2013

3/11 Update

Maddy had a big day yesterday as she finally got extubated and went back onto the ram cannula. She continues to do very well and she's up to 2 mLs per hour on her feedings. At this point, we don't have any looming tests, major imminent hurdles, or causes for concern which is a huge relief. Thursdays have been her bad days so our hope for the week is that she can make it through to the weekend without any setbacks. It's a long roller coaster and we know we have a few more down days ahead but every day is one more closer to bringing her home.

We both got to kangaroo with her yesterday and she made it about two and a half hours before we had to put her back in. I come visit after I finish up work for the day so she cut my time short a little but it's still so amazing to get to hold her so no complaints here. 

Kristen and I were cracking up yesterday when she had to sneeze like whoa. Here's the video.

Kristen took a few action photos from her off the ventilator yesterday.














1 comment:

  1. OMG can this kid get anymore cuter?! Love you to pieces Maddy!

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